Surfing Adventure PT.2

Hey guys! Ash and Eb here. Sorry it’s been awhile, but we’re back to talk about our latest surfing adventure. We had so much fun surfing on Saturday! Ash surfed first, and Eb surfed after. We were smiling the whole way through. They loved Ash’s scream because she was having so much fun. Eb had so much fun that she went twice. She wiped out so hard she flew like a catapult off her board. She hit the bottom of the ocean. It felt like forever waiting for someone to help her. Ash wiped out as well. It was still a fun trip and we can’t wait to go back next year. Special thanks to Life Rolls On for this awesome experience!

Until next time…. like our page Friends On Wheels (Cerebral Palsy)

Xo,

Eb & Ash💕

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Courage To Go After The Dream

“Have I not commanded you? Be strong and courageous. Do not be terrified, do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9

 

Oftentimes, it takes a lot to go after a dream, an idea, or something we really want. Maybe we’re on the verge of really wanting to write a song,  or start some sort of project, but we’re really afraid of how it’s going to turn out, or what people will think. Will they support you and the goal you’re trying to go after? Maybe people have told you that what you’re trying to accomplish is really hard. Maybe you’ve even been told no. A “no” is ok. In life, I’ve learned that a “no” can often lead you closer to the dreams and the plans God has for you. A “no” leads you closer to the deepest passions of your heart. When Ebony first came to me with the idea to start this blog, I was honestly afraid. What would I write about? How many ideas would we have? Would people even support us, and read what we write? Many people have always told me I have the gifts of a writer, but I would’ve never had the courage to start a blog if it wasn’t for Eb. Sometimes, you need that push, and a lot of times, it’s great to have constructive critiscim. When Eb and I were first promoting this blog, and telling people we wanted to spread disability awareness, someone told me that this goal can be a really hard one to achieve, and it honestly made me more afraid, but I used that fear as motivation to help me become a better advocate. Eb and I have gotten more support in the last year  from people both with and without disabilities than we ever thought we would. God gives us a dream, an idea, or a gift because He wants us to use it. Don’t let fear stop you from your dream because you’re afraid of people think. Maybe your goal won’t be perfect. Nothing in this world ever is perfect, but as long as you’re glorifying God with your gifts, I can guarantee He’ll help you with the rest.

In Christ’s Love,

Ashley N. Moulin

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What Hollywood Gets Wrong About Disability and Disorder

Recently, I saw the movie Everything, Everything. It may have been because the movie started at 7:15 p.m., and we did not get there until 7:40, but honestly, I found it was really nothing to scream about. This movie is about a young teenage girl who supposedly has Severe Combined Immunodeficiency, (SCID) and as a result, has to be careful about going into the outside world because it is toxic to her, and can cause death, so she’s been “trapped” inside her house.  Long story short, she meets this boy who moves into the neighborhood through text, and she sneaks out and does everything to be with him including going on a trip to Hawaii. I don’t know much about this disorder, but I read some movie reviews from people with SCID, and they were saying that one of the reasons  this movie was an insult to them was because there are days when they actually CAN’T do things that they want because they are so sick. What’s even worse is at the end of the movie, it turns out she doesn’t even have SCID. I mean, really? Bad representation here. Just last year, there was also rave about this movie called, Me Before You. It is also a romance about a guy who was in an accident, and ends up in a wheelchair. I never saw this movie, but I really had no desire to because I heard the guy in the wheelchair ends up killing himself, and not to mention the actor in Me Before You doesn’t actually have a disability in real life. Both of these movies not only represent disability and disorder poorly, but they say that disabililty and disorder aren’t worth it. That they aren’t worth representing right or promoting with respect in the movies or on T.V. That if you have a disability or disorder, you supposedly live a “poor life” and you may as well live without it because your life isn’t worth living. Life is better that way. Either go find a cure, or go kill yourself. No, no, no. Just stop. Is this the way you see Ebony and I living our lives? What do these movies say to teenagers with disabilties? Surely, it can’t be building up self-esteem, especially for those who weren’t born with their disability like I was. I mean, I get why living life when you are disabled from an accident would be harder, but I know of people who are in this exact situation who instead of sitting around actually help others. God has a plan for everyone, and I would say to disabled people instead of listening to movies and media, use your situation. Speak out. Believe it coming from a disabled person, there are worse things than living with a disability. I respect your opinion if you liked these movies, and I am sorry for any spoilers if you haven’t seen them. I just felt the need to write about this. Don’t believe everything you see, hear, read, or whatever. Your best source of information would come from an actual disabled person.

 

In Christ’s Love,

 

Ashley N. Moulin

 

Like Friends On Wheels on Facebook: http://www.facebook.com/cpbuddies

 

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What Hollywood Gets Wrong About Disability and Disorder

Recently, I saw the movie Everything, Everything. It may have been because the movie started at 7:15 p.m., and we did not get there until 7:40, but honestly, I found it was really nothing to scream about. This movie is about a young teenage girl who supposedly has Severe Combined Immunodeficiency, (SCID) and as a result, has to be careful about going into the outside world because it is toxic to her, and can cause death, so she’s been “trapped” inside her house.  Long story short, she meets this boy who moves into the neighborhood through text, and she sneaks out and does everything to be with him including going on a trip to Hawaii. I don’t know much about this disorder, but I read some movie reviews from people with SCID, and they were saying that one of the reasons  this movie was an insult to them was because there are days when they actually CAN’T do things that they want because they are so sick. What’s even worse is at the end of the movie, it turns out she doesn’t even have SCID. I mean, really? Bad representation here. Just last year, there was also rave about this movie called, Me Before You. It is also a romance about a guy who was in an accident, and ends up in a wheelchair. I never saw this movie, but I really had no desire to because I heard the guy in the wheelchair ends up killing himself, and not to mention the actor in Me Before You doesn’t actually have a disability in real life. Both of these movies not only represent disability and disorder poorly, but they say that disabililty and disorder aren’t worth it. That they aren’t worth representing right or promoting with respect in the movies or on T.V. That if you have a disability or disorder, you supposedly live a “poor life” and you may as well live without it because your life isn’t worth living. Life is better that way. Either go find a cure, or go kill yourself. No, no, no. Just stop. Is this the way you see Ebony and I living our lives? What do these movies say to teenagers with disabilties? Surely, it can’t be building up self-esteem, especially for those who weren’t born with their disability like I was. I mean, I get why living life when you are disabled from an accident would be harder, but I know of people who are in this exact situation who instead of sitting around actually help others. God has a plan for everyone, and I would say to disabled people instead of listening to movies and media, use your situation. Speak out. Believe it coming from a disabled person, there are worse things than living with a disability. I respect your opinion if you liked these movies, and I am sorry for any spoilers if you haven’t seen them. I just felt the need to write about this. Don’t believe everything you see, hear, read, or whatever. Your best source of information would come from an actual disabled person.

 

In Christ’s Love,

 

Ashley N. Moulin

 

Like Friends On Wheels on Facebook: http://www.facebook.com/cpbuddies

 

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An Educated Child Becomes A Better Adult

Recently, while at Johnny Rockets, this dad with two kids came and sat at the table beside mine. They were pretty young kids, and I noticed his little boy kept looking at me curiously. When they were done eating, the family got up to leave, and maybe it was my imagination, but it looked like the little boy was walking up to talk to me, and his dad grabbed him by the hand, and they walked out of the restaurant. Wrong move, dude. There are going to be disabled people in his world, and all around him. What happens if he encounters a physically or mentally disabled child at his school? Are you going to teach him to ignore them, too? Whether I was right about what I encountered at this restaurant or not, I want to use this moment to speak out. If your child wants to come up and speak to a disabled person, LET THEM DO SO. If you don’t, I am sorry to say your child is going to grow up to be a clueless and ignorant person. Believe me, it is better to educate them when they are young. As a disabled person and advocate, it is my job and pleasure to educate your child.

In Christ’s Love,

Ashley N. Moulin

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Defining Success

Hey guys, it’s Eb. I hope everyone is having a great day! 

Just when you think you’ve got the game of life figured out. you don’t.  That’s what I’m learning these last few months unexpected things happen that are out of my control. As much as I try my best  some things just are meant to happen and others not so much. It’s hard not to beat myself up about things I can’t change.  Fortunately everyone can relate to this.  

What qualifies as success and how do you define it? Some might say having a lot of money, cars and the size of your house.  For a long time that was my definition too. I know it’s shallow, but that was my thinking at the time.  I’m learning that success isn’t monetary. It’s about who i am as a person and my character.  Circumstances are different for everyone:  what’s success to you? Until next time….Like Friends On Wheels (Cerebral Palsy)

Xo, 

     Eb💕